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Patient association

The assocation’s objective is to represent the interests of patients in the Netherlands, and to facilitate contacts between the members. Every year PXE Nederland oganises a contact day, during which patients have the opportunity to meet one another, and doctors present information about the latest developments.  PXE Nederland publishes a newsletter a few times a year, and if you are a member you will receive email updates regarding recent developments.

For information or a sympathetic ear, contact :
Kitty Velu-Kromhout

mkvelu@upcmail.nl of tel. 023-5252985  (between 09.00 – 17.00 hrs)

 

To become of PXE Nederland, please fill in the form below.

For more information about PXE, please contact: dirkkrul@ziggo.nl

Join PXE Nederland

    Do you have PXE? See below if there’s a PXE website in your country.

    France http://pxefrance.org/

    Italy  http://www.pxeitalia.unimore.it/

    Germany https://www.pxe-shg.de/de/startseite.html

    Portugal: https://www.pxeportugal.org/home

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    Check both eyes regularly. If you see any distortion, contact your ophthalmologist away!

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