The assocation’s objective is to represent the interests of patients in the Netherlands, and to facilitate contacts between the members. Every year PXE Nederland oganises a contact day, during which patients have the opportunity to meet one another, and doctors present information about the latest developments. PXE Nederland publishes a newsletter a few times a year, and if you are a member you will receive email updates regarding recent developments.
For information or a sympathetic ear, contact :
Kitty Velu-Kromhout
mkvelu@upcmail.nl of tel. 023-5252985 (between 09.00 – 17.00 hrs)
To become of PXE Nederland, please fill in the form below.
For more information about PXE, please contact: dirkkrul@ziggo.nl
Amsler Grid
Check both eyes regularly. If you see any distortion, contact your ophthalmologist away!
