The assocation’s objective is to represent the interests of patients in the Netherlands, and to facilitate contacts between the members. Every year PXE Nederland oganises a contact day, during which patients have the opportunity to meet one another, and doctors present information about the latest developments. PXE Nederland publishes a newsletter a few times a year, and if you are a member you will receive email updates regarding recent developments.
For information or a sympathetic ear, contact :
email@example.com of tel. 023-5252985 (between 09.00 – 17.00 hrs)
To become of PXE Nederland, please fill in the form below.
For more information about PXE, please contact: firstname.lastname@example.org